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Thread: hhmmn, feeding clinic today and IFSP meeting

  1. #1
    angeleena is offline INCIIDer - A Community Creator
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    Default hhmmn, feeding clinic today and IFSP meeting

    All in one lovely LONG day!

    The feeding clinic was almost 3 hours, and they unfortunately, did not have any ideas past the ones that we have already tried.

    She spit her food out there, as she does at home.

    She has gained weight though in the past month, because we took her off of antibiotics !!!! (daily bactrim for urinary reflux) She suddenly got an appetite!

    The IFSP meeting went OK I guess. I mean, we are sort of at a loss about it when we know she needs weekly OT, and they will only give her monthly OT. We need the private OT, but cannot afford it. so, anyway, they do give her an aid for THEIR TIMES THAT THEY PICK 9 hours a week at preschool for 5 weeks over the summer. And, they will pay for 2/3 of her preschool, so that is nice. Not sure what else, cause the speaker of the meeting was the counties autism specialist who had a lot of great things to say.

    Ella is educationally mildly autistic - the language delay made her PDD-NOS instead of Asperger's.

  2. #2
    danellsar is offline INCIIDer - A Community Creator
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    It sounds like you are getting some help, which I suppose is better than nothing. Has Ellie had the surgery for the reflux (or will she have it at some point)? Both my nieces have that, and the older one had the surgery about 2 years ago when she was 6. She hasn't had a single infection since. The younger one is gearing up for surgery this fall (she'll be 5.5). My SIL says it worked like a charm to fix the problem.
    Ellen

  3. #3
    trek is offline INCIIDer - A Community Creator
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    Have you consulted an attorney? It might be worth it to get the school to pay for private therapy? I am passionate about early intervention and even more so when services are NOT avaiable or less than stellar.

    hugs

  4. #4
    angeleena is offline INCIIDer - A Community Creator
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    They say that they will not pay for it because funds are not available, and also because they are providing her with an aid at school.


    I am waiting for someone to send me some information about other possibilities for funds for the private OT.


    We did find an attorney who specializes in this sort of thing, and she will look over all of the medical files, etc to see if ella is getting what she needs.

    But, if there is not funding for it, we just sort of felt like it was maybe pointless and that we should try to find another way.

    I know that our state is having a lot of funding problems right now.

    However, we have to get our girl back into the OT she needs.

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