Page 1 of 2 1 2 LastLast
Results 1 to 10 of 14

Thread: SID/ADHD child going in for surgery......

  1. #1
    Christine S Guest

    Default SID/ADHD child going in for surgery......

    We just found out yesterday Tobin has a hernia and will need surgery. For various reasons, we need to expedite this so it'll happen probably in the next 2-3 weeks.

    I'm not worried about the surgery itself. It's outpatient, minor, and will be done by a well recommended surgeon.

    It's how Tobin will react to it AND his recovery I'm worried about. Does anyone have any helpful hints on preparing him? Keeping him calm for recovery (short of duct tape...got plenty of that!)?

    Thanks. I'm having a little Mommy freak out moment with this. It's also happening right at the start of school so the timing alone is really bad.

    C

  2. #2
    mickey2's Avatar
    mickey2 is offline INCIIDer - A Community Creator
    Join Date
    Jan 2006
    Posts
    1,565

    Default

    mckevor has had 2 surgeries that he remembers. the first time, we tried to prep him...perhaps we over did it b/c he was full of anxiety over every little part of it.

    the 2nd time, we didnt tell him until the morning of, on the way to hospital. WHY? b/c my dss said he liked it better when we dont tell him of bad things about happen, so he has less panic time over it. since both boys have anxiety issues, we decided to try dss' way.

    we took a dvd player and video games for ds to play while we waited for anethesia. the key was taking games and movies he had been wanting to see/play but we didnt own (or so he thought). so they were all new to him. this kept his mind off the pending surgery.

    when he woke, it was very very hard for me....it took much longer than normal for the effects to wear off. his neuro was afraid he might be regressing again after the surgery. to be safe, we had to stay overnight for obs. he finally got his speech back almost 7hrs after he woke. i dont say this to scare ya...but just sharing how hard that was for me. we thought we lost him (as in autism regression) all over again.

    anyhow...thats how we handle surgeries around here now...we dont tell the kids or dh (Either) until the day of or night before. hope that helps, let us know the date for a prayer vigil. hugs

    oh, almost forgot, the morning of the surgery, have him do lots of his calming sensory/deep pressure stuff before leaving the house.

  3. #3
    Christine S Guest

    Default

    THanks. T does better when he is prepared for things. Otherwise it would be a HUGE meltdown that day.

    I love the idea of a video game or something. Maybe I'll look at some Leapster games and just bring that with us.

    Just got a pre-op appt for next thursday and I assume we'll get the surgery date from there.

    Oh, and you didn't scare me about the regression. T has not been under general anesthesia before so I'm ready for the unexpected at this point. I'll talk to his OT about calming activities as well.

    Thanks,
    C

  4. #4
    anniemc2000 is offline INCIIDer - A Community Creator
    Join Date
    Jan 2006
    Posts
    921

    Default Couple of things....

    If you have a play doctor kit and dress up stuff, I would take that out and let T practice being the doctor on his animals or dolls. When you go on Thursday you can ask if they can give you a paper mask, the booties for your feet, or any other other "real" medical equipment to play with.

    See if they have a pre-op tour for kids...usually these are led by a child life specialist.

    Ask if you can accompany him for the anesthesia induction.

    You'll want to tell anesthesia about T's tendency toward croup- he may wake up croupy if they need to place an airway during surgery. My dds usually get a dose of steroids through the IV in the OR to prevent this.

    My kids find it helpful to practice doing the "mask" used for induction before the big day. Some places let the kids pick a flavor for their mask which is a big thing.

    My younger dd does not do well being pre-medicated. She has the opposite response to sedatives, so anytime she gets a sedative, she gets revved and out of control. This can be fairly common in kids with other issues like sensory stuff. She responds the same way to benadryl- makes her a very busy girl. She does much better with just me carrying her into the OR without a sedative.

    My younger one also does not wake up well- she is disoriented and can tantrum as she wakes up. Making sure their pain is well-controlled can help avoid this, also having "normal" things ready for them when they wake up, like a favorite toy or video can help them get oriented more quickly in recovery.

    Well I guess my list was more than a couple things!
    Hope all goes well!
    Ann

  5. #5
    mk Guest

    Default No advice but sorry to hear about the surgery..

    I hope you all get through it without too much stress!

  6. #6
    danellsar is offline INCIIDer - A Community Creator
    Join Date
    Jan 2006
    Posts
    2,141

    Default

    My dd had ear tubes when she was 3. The surgery center was great! They had videos for the kids to watch while they were waiting in pre-op.

    They brough each kid their mask and they got to choose the "flavor" they liked best. Then they sprayed whatever flavor they chose (I think the choices were grape, apple, cherry, orange, and bubble gum) directly on the mask, and gave it to the child to explore with while they were waiting. Then THAT was the mask they used to put them under. They just had the child hold the mask to their own face and attached the hose, and had them breathe few times till they were out.

    The other wonderful thing they did for the kids was to NOT put in IV's until after they were unconcious. No screaming, nothing. It was a little weird for dd to have it in when she woke up, but it came out almost right away.

    For my dd (who is SID/Aspergers), being prepared made all the difference. She knew what was going to happen, and even recited it to the nurse while she was waiting.

    We were at a pediatric specialty surgery center, and I truly think that made the difference (since they knew so much about keeping the kids calm).
    Ellen

  7. #7
    zoeyz is offline INCIIDer - A Community Creator
    Join Date
    Jan 2006
    Posts
    3,371

    Default

    Quote Originally Posted by Christine S
    We just found out yesterday Tobin has a hernia and will need surgery. For various reasons, we need to expedite this so it'll happen probably in the next 2-3 weeks.

    I'm not worried about the surgery itself. It's outpatient, minor, and will be done by a well recommended surgeon.

    It's how Tobin will react to it AND his recovery I'm worried about. Does anyone have any helpful hints on preparing him? Keeping him calm for recovery (short of duct tape...got plenty of that!)?

    Thanks. I'm having a little Mommy freak out moment with this. It's also happening right at the start of school so the timing alone is really bad.

    C
    DS has had 3 surgeries (all ear-related). I call ahead and ask the nurse what he should expect, down to details that an adult probably wouldn't care about (will he change into their gown, their shoes, will he get a shot or will he breathe magic air to take a nap, will mom or dad be going back to the operating room with him or will mom/dad hand him over to nurse/doctor, and when would that happen, can he bring a blanket or stuffed animal of his own, etc). Basically, be able to tell him a play by play of what will happen that day, and don't let there be any surprises for him if you can help it.

    As for recovery, our experience is that coming out of anesthesia is a little rough, and nothing has really made it better. We tried a portable DVD player one time for younger DS in the recovery area, with a Thomas DVD he'd never seen before, and that helped somewhat. They are just a little disoriented and must feel weird until they're fully out of the anesthesia. He might feel nauseous (ask nurse what to expect when he wakes up in terms of how he will feel (pain, sleepy, etc) and what or when he can eat or drink - he will probably be required to eat and drink a little something before they let him leave, but maybe that is different for his type of operation... definitely ask ahead of time).

    If his K has a show and tell time, maybe he could tell (but not show! unless it's the puzzle piece they remove ) about his surgery experience. Maybe that would be something for him to look forward to, telling his teacher and/or classmates about his surgery.

  8. #8
    pepperlc is offline INCIIDer - A Community Creator
    Join Date
    Jan 2006
    Posts
    6,365

    Default big hugs

    faith has had surgery twice. they were very good about keeping things friendly and non-scary. Talk with the surgery place to get an idea of exactly what will happen step by step. We spent most of our time in a playroom with a tv. Also they might be able to give you a tour if you explain the situation.

    big hugs for both you and tobin. is he in pain?

    karen

  9. #9
    KaylieS Guest

    Default

    Advance warning: tons of typos. I'm so tired I can barely think, let alone type! Sorry!

    Both of my kids have been put under. Cassie has 4 times, for her VCUG (which wasn't much, because it was just enough to get the catheter in her),
    for her stitches, and for 2 dental things.

    The stitches happened around midnight. This was 3 yrs ago. Can't remember what he used, but no gas. just an IV sedation. The big problem we had was we couldn't wake her up b/c the stitching was done around 1:30 am and her body's natural position was to be asleep. That was honestly a little scary. It was just me, dh, ds the baby, anestestheiologist (sp???) and the dr. I think to get her awake I (duh, mom knows best) finally figured out we needed to cool her a bit so we took her blanket off of her and that made a big difference...then all of our poking, talking, etc did the trick.

    The dental ones were more like what you'll go thru, I'd' think. She had a mask to relax her and pretty much put her out (plus demoral). The worst part was teh waking up part. And I've been thru that w/ds for his 3 surgeries.

    Honestly, the waking part, well, there really is no easy way to get thru it. Think of Tobin at his most cranky or sick...or both. Cassie was very cry-ey and grumpy. And she had to pee but couldn't walk - dopey. But she INSISTED (b/c she is so stubborn). So she was staggering trying to walk and falling. yep. That was fun.

    Shane is my HUGE cranky butt that meltsdown and that's exactly what he did upon awakening. It was painful. I couldn't console him. he was angry at me and fought me but I had to hold him b/c he couldn't walk w/out falling. all I could do was try and watch the dang clock for it to wear off. Then he had some juice and gradually got better and then was fine.

    Neither of them have had to deal w/being careful during recovery so can't help there. (his was dental and his endoscopies to look in his stomach).

    For preparation, I explained in a very mild, nonthreatening, nonscary way what would be happening, like "you have a hernia, which is a little bump inside you, about "here". the doctor will make a little opening in your skin, and go in there and fix the bump so it's not bumping anymore. Then he'll close up your skin w/tiny stitches, just like you see here on your shirt." Then you'll be all better!" "will it hurt?" "nope. he'll give you some sleepy stuff to help you sleep while he does it, so you won't feel a thing! And afterwards, since you might be hungry then, you can pick a fun place to go for lunch,a dn you and I will have a date!" (or go to toy store, or get ice cream, etc).

    I don't know about his limitations afterwards, so not really sure what to say. Haven'et you been thru somethign like that before w/T, when he was sick w/something and couldn't run around??? I have a horrible memory!

    To keep him calm right after he wakes up, well, I've never been thru it w/a 6 yr old. Cassie's last time was over a year ago. But her's wasn't as strong an anesthesia as T will have...His will be more like ds's I'd guess. And I have no clue what to do to make it better. A favorite blankie or stuffed animal would help, I'd think.

    Also, for both of my kids, and all their procedures, I've been able to be with them until they are out. That has REALLY helped them AND me.

    We had to get blood drawn last week for dd. She is not afraid of blood and generally likes all the medical stuff. I swear she will end up a dr or in the medical field in some other way. Anyway, all I told her is they needed to test her lead and iron levels and explained what lead and iron meant. I didn't tell her how - except it wasn't a shot.

    When we walked in the lab, I said - here's where they test it! all cheery, ya know? Then I said, she'll take a tiny bit of blood out of your arm to do the test. I told the lab tech how fascinated dd was and how great dd does w/medical stuff (this of course made dd feel good about it all). So the tech picked right up on it all, and explained first exactly what she would be doing. Then she did it. honestly, dd did NOT even flinch. I was very proud! (and shocked!).

    By focusing on what the test was for, rather than how it was done, I was able to keep her attention on something interesting, and get her to "buy" into needing it, rather than her worrying about what would happen to her. But I really kinda went by how she acted and what she asked.

    Honestly, having this thrown at me right before school starts would freak me out too!!!!! you'll do great!

    If he doesn't seem thrilled to take a stuffed animal, could you buy him a webkinz and give it to him on the way to the hospital and he could take it in w/him? Or something like taht? For ds, he picked out a mickey helium balloon before the surgery, so afterwards, he got his precious balloon back. (he was littler than, now a webkinz would be better).

    BTW...I applied for a job in Lakeland CO. Decided to search in CO on a big whim, and found a REALLY exciting prospect! market research for Group publishing - they do church curriculum. I didn't even know where CO was!! LOL Texas and Kansas are as far west as I've ever been! But so many of you seem to like it there, and I'm getting desperate looking for jobs!

    It looks like a nice area, but COLD!!!!!!

    Kaylie
    Last edited by KaylieS; 08-26-2007 at 08:43 PM. Reason: warning

  10. #10
    Christine S Guest

    Default

    THanks. THat's exactly what I"m wanting...a play by play of hte surgery.

    Unfortunately, now it looks like we're having to postpone the surgery. Ugh. Dh got a new job so we're dealing with insurance issues.

    C

Page 1 of 2 1 2 LastLast

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •