Results 1 to 5 of 5

Thread: Update on Grant...

  1. #1
    trek is offline INCIIDer - A Community Creator
    Join Date
    Sep 2006
    Posts
    2,058

    Default Update on Grant...

    We took Grant to see a speech specialist at local Atlanta Children's Hospital. Was was a stellar visit-he helped explain things to my dh. Grant also enjoyed talking into a computer The Dr was amazed that Grant is in his 7th year of speech therapy. He noted Grant's open mouth, and occasional drooling. Eveything seems to be in working order-he checked several times.

    I am waiting for the official report, but dx besides Apraxia is Dysarthia, and motor planning issues. We will go ahead with either cat scan or MRI which Grant has never had, but obviously is a good idea.

    Dr referred Grant to a stuttering speicalist. A gentleman that is highly recomended. Of course with no insurance to pay, and over an hour drive each way, it will have to be for us to learn how to help Grant at home. The school SLP has been using incorrect techniques, so I made an appointment for next month. I hope the school SLP is open to learnign the correct way to work with Grant.

    I postponed the his IEP meeting-I need to hire an advocate, and I want to complete testing. The speech speicalist suggested a new round of education/psycological testing which is consistent to what the Dev.Pedi recomended.

    The last batch of testing when he was 5 almost 6 pointed towards NVLD, but of course the school has not acknowledged that just like they have not acknowleded his Apraxia for the last 5 years. They say that a articulation disorder is the same as Apraxia?

    Thanks for letting me share,
    Wendy
    Grant 8 years old

  2. #2
    pepperlc is offline INCIIDer - A Community Creator
    Join Date
    Jan 2006
    Posts
    6,365

    Default

    Wow what a great sounding appt. Where do you live? There seem to be no services anywhere near you.

    Maybe its worth seeing the specialist just 1 or 2 times so you can get all the info for the school to implement. Seems like the SLP should know what they are doing

    Good luck with the advocate. I think its a great idea especially if they are provide services but are doing things wrong.

    Hugs
    karen

  3. #3
    Laura H1 is offline INCIIDer - A Community Creator
    Join Date
    Jan 2006
    Posts
    3,152

    Default This sounds so promising.... YAY!!!

    Quote Originally Posted by trek
    We took Grant to see a speech specialist at local Atlanta Children's Hospital. Was was a stellar visit-he helped explain things to my dh. Grant also enjoyed talking into a computer The Dr was amazed that Grant is in his 7th year of speech therapy. He noted Grant's open mouth, and occasional drooling. Eveything seems to be in working order-he checked several times.

    I am waiting for the official report, but dx besides Apraxia is Dysarthia, and motor planning issues. We will go ahead with either cat scan or MRI which Grant has never had, but obviously is a good idea.

    Dr referred Grant to a stuttering speicalist. A gentleman that is highly recomended. Of course with no insurance to pay, and over an hour drive each way, it will have to be for us to learn how to help Grant at home. The school SLP has been using incorrect techniques, so I made an appointment for next month. I hope the school SLP is open to learnign the correct way to work with Grant.

    I postponed the his IEP meeting-I need to hire an advocate, and I want to complete testing. The speech speicalist suggested a new round of education/psycological testing which is consistent to what the Dev.Pedi recomended.

    The last batch of testing when he was 5 almost 6 pointed towards NVLD, but of course the school has not acknowledged that just like they have not acknowleded his Apraxia for the last 5 years. They say that a articulation disorder is the same as Apraxia?

    Thanks for letting me share,
    Wendy
    Grant 8 years old
    We had drooling issues with two of my boys for 3 years... our OT did wonders in strengthing their cheek muscles and lower lips and flexibility in their tongues(i'm sure there is a more technical term, but those are the areas that she "excercised")... funny our SLP did horrible with exercises also, she mainly focused engaging them in talking and continuing with sign language, she did no "motor" work with them, which our OT thought was odd, too!....

    please keep us updated! laura

  4. #4
    trek is offline INCIIDer - A Community Creator
    Join Date
    Sep 2006
    Posts
    2,058

    Default

    We live about 28 miles east of Atlanta. The school therapist who has worked with grant since kidnergarten bless her heart has been the BEST so far through the school system. She is the one that referred me to the speech doctor.

    The school OTs do not deal with oral motor and do not do much for sensory issues either.

    I plan to call the reular Pedi today, Grant has been having daytime pee accidents for months, but the past few weeks they are happening numerous times throughout the day. I plan to ask who they refer children to who need edcuational/psychological evals.

  5. #5
    Val. is offline INCIIDer - A Community Creator
    Join Date
    Jan 2006
    Posts
    3,854

    Default

    I don't know the answers to your questions, but I wanted to just offer my support. I think it's great to be getting more answers. More info never hurts! Good luck!

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •