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Thread: is 5 too young to test for ADD?

  1. #11
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    Lisa - do you happen to have any websites that might be a good place to start reading about metabolic disorders? I have long been concerned about two of my kids (the two who happen to have SPD), mostly my dd. She also has mild low muscle tone, had a speech delay, and has the odd benign condition of orthostatic proteinuria (protein in her urine only when standing, not laying down, though I myself had that when I was her age). She's super skinny, which drives me crazy of course - you can see her ribs. Anyway, we've never really investigated the metabolic angle (except for a brief wild goose chase when she was a baby and her urine smelled like maple syrup - but she doesn't have that). Her symptoms would be considered rather mild, I assume, but still, she's an oddball. I really don't know the first thing about metabolic stuff, so it well may be unrelated to any of my kids, and still I feel the need to at least check. any sites? thanks!
    -beth

  2. #12
    angeleena is offline INCIIDer - A Community Creator
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    Lisa,
    thanks for your posting.

    I am curious now. My dd is also PDD...and we are totally confused by how she can be in a "good cycle" for a few weeks - VERY talkative, makes a lot of sense most of the time, fewer fits, less anger, almost like a "typical" kid...and then bam, out of nowhere, she is out of it, does not answer questions, throws dozens of tantrums daily and is very angry. She had about a 2 mo spell of feeling really bad and acting really bad too, (BAD SPD, ASD symptoms) where dh and I were at our wits end...and then nearly overnight she changed back.

    The only thing different is that we re-introducted a multivitamin.

    We do not know what is the trigger, but we REALLY want to find out.

    My parents had seen ella last week, and babysat one night when she was in the "bad cycle" as we call it. Then, they saw her last night and she is in the "good cycle" and they could NOT BELIEVE the difference. They were SOOO HAPPY to see her happy. Me too.
    So, now I am going to go google this mitochondrial PDD that you mention.... I wonder if....?
    Does this sound anything like what you know?
    THANKS!!!!!!!!!!!!!!!!!!!!!!
    -angi

  3. #13
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    mickey2 is offline INCIIDer - A Community Creator
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    Default our experiences

    dss, now 17 was dxd with adhd in kindergarten, we knew way before that. he was always hyper and gave up naps early. my now 6yo was dxd by same neuro at 1yr with hyperactivity. he had seen ds many times from nicu, monthly f/u's and dss' monthly med visits at the time. my 6yo has never been dxd with the attention deficit part, just an fyi.

    i think adhd and hyperactivity is much easier to dx early and so does our neuro than ADD w/o the hyper elements. does this help? hugs

  4. #14
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    www.umdf.org

    my 6yo also has a mito dx (mito complex 1 and carnitine dysfiency to be exact), cp from birth trauma and an autism label. we too learmed much from the ladies on this board years ago. we finally had the muscle biopsy by dr shoffner in atlanta almost 2yrs ago to confirm the mito dx that our former ped kept blowing off b/c of the autism dx by dev ped and cp dx by his nicu f/u team. it was frustrating.

    he now gets a compounded mito cocktail based on his labs and genetic makeup which includes l-carnitine as well. i am forever grateful to the mito moms here for speaking up (even if it was just a whisper in my ear at the time). having the mito dx helped put many pieces together on why his body has/had trouble with soo many biological functions. hugs

  5. #15
    emilyb00 is offline INCIIDer - A Community Creator
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    Default My DS got a diagnosis

    at age 4.5 with ADHD from a Developmental Ped and now at age 7 he does not appear to have ADHD. Many of his issues have just improved with age and maturity. He does have issues with organization and remembering to bring stuff to and from school each day (including his coat on 35 degree days!), but his teacher isn't too concerned about it and said many kids still do in first grade. She actually thinks he may be gifted and wants us to get him tested for it at the end of the year. Often gifted kids are mistaken for ADHD as well. So Colin at age 4.5 portrayed the classic ADHD symptoms but things have gotten better.

    You definitely can pursue an evaluation at age 5 and see what you can find out.

  6. #16
    trek is offline INCIIDer - A Community Creator
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    I know my older ds dev. Pedi had an inkling when grant was 3, but he was not formally dx til this sept when he was newly 8 years old. I think between 6 and 7.

  7. #17
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    Thanks Emily, this reminds me about that recent study saying that in many cases kids with ADHD are actually delayed, not permamently different.

    I am leaning toward seeing our regular developmental ped (an ASD specialist, but someone whom I trust and rely upon even for CP stuff) and getting her input on whether we should get another eval with an ADD specialist.

    Thanks!

    Lisa

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