The International Council on Infertility Information Dissemination, Inc

Help Now Online

Help Now Online
Web Site Offers Help for Couples Struggling with Infertility
By Linda Davey
 

 

As originally published in the July, 1996 issue of Today's Dallas Woman Magazine 
 
For couples struggling with infertility, finding support and information regarding diagnosis, research and treatment can often be a frustrating experience. While traditional resources, such as media, physicians, local support groups, libraries, and bookstores provide good information on well-established and conventional treatments, they often can't stay current with the latest cutting-edge in the world of infertility Superhighway.

A quick search of the World Wide Web using a comprehensive search about such as Yahoo!, Web Crawler, Infoseek Guide, Lycos, Excite, or Alta Vista will yield nearly 200 Websites that provide information on infertility. Culling through all this information may seem daunting at first glance, but the search engine will usually rank the sites in order of relevancy. Additionally, online services such as America Online and Prodigy have very active bulletin boards specifically for subscribers who wish to post information about their ongoing infertility battles, and both services provide access to alt.infertility and misc.health infertility, the Internet's computer bulletin boards, commonly referred to as newsgroups.

In addition to accessing personal stories and treatment information from hundreds of others struggling with infertility, you may ask and answer questions, send private E-mail, post your own infertility story, and join an E-mail group comprised of others who share the same medical diagnosis. If you are an online "newbie," you can choose to "lurk," that is, read posts anonymously without participating. Subscribers to online services may also participate in regularly scheduled, "real time" chats.

During my own search for information in Cyberspace, following my fourth pregnancy loss in as many years, I met two other women actively participating on bulletin boards. Together we established the InterNational Council on Infertility Information Dissemination (INCIID--- pronounced "inside"). INCIID is a nonprofit organization dedicated to providing consumers with information regarding the causes and treatments of infertility and pregnancy loss. INCIID reaches its audience primarily through Cyberspace.

The Web site features an extensive list of fertility acronyms and terms, basic testing information, a reading list and a growing series of fact sheets and articles on cutting-edge technologies and treatments authored or edited by acknowledged leaders in the field of infertility. Topics include immunology and recurrent pregnancy loss, micromanipulation and male factor infertility, insurance coverage for infertility, predicting implantation success via ultrasound screening, and information on evaluating clinics. The organization currently has members from seven countries around the world and is working with other organizations to establish more ties internationally, including a mirror Web site in the United Kingdom. You can find INCIID on the Web at http://www.inciid.org/.
 
 
Editor's note: There's a happy ending to this story for the founders of INCIID. For some mysterious reason, creating the web site served as the catalyst of creation for the trio. Up until that point, between the three of them, they had suffered 12 pregnancy losses over 16 years of infertility. Within three weeks of creating INCIID, they each discovered they were pregnant. In the summer of 1995, Linda Davey and her partner, Terry Grant, both delivered their "miracle babies" on the same day; Nancy Hemenway of Arlington, VA, delivered her first child two and a half weeks later.

The InterNational Council on Infertility Information Dissemination (INCIID --- pronounced "inside") is a nonprofit organization dedicated to educating infertile couples about the latest methods to diagnose, treat and prevent infertility and pregnancy loss.  With traffic exceeding 23,000 accesses daily, site maintenance becomes expensive. If you value the information and support provided and would like to see INCIID continue to grow, please consider becoming an INCIID Sustaining Member.

 

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