NIAW 2016, Julie's Story: Fragile X Syndrome

Hello, My name is Julie Thomas and my husband is Steve. We went through Embryo Donation or ED to get our daughter. Here is our story:

We meet in High school (awe, I know), and eventually married in 2007 after 6.5 years of dating! We always knew we would have to go through IVF to have children. I carry a genetic disorder called Fragile X syndrome, which causes developmental delays, is passed on the X chromosome. I knew I was a carrier since around age 10. I have 2 brothers that are affected by fragile X and a sister that is not a carrier nor has it. I was told I had a 50%pass rate to our future children and I also had over 1,000 repeats of the gene CGC. That is a huge number!....continued  

Miracles and Memories Pins

Miracles and Memories Pin

Help support the infertility community with the Miracles and Memories Pins. Read about the three colored lapel pin representing all aspects of family-building.

A new way to track ovulation at home

MFB Fertility, LLC Develops Only In-Home Test to Detect Progesterone

 

Research has shown that couples get pregnant faster when they know when exactly when ovulation takes place. Fertility monitors and ovulation predictor kits allow couples to track estrogen and luteinizing hormone (LH) levels from home. However, until now, there were no tests available to track progesterone.

 

Advocacy: Your Child's Most Important Team Member

Two women shouting at each other

By Brice Palmer

[Note: REGISTER and join us for the Webinar to discuss this article on March 10, 2016 at 7:30 PM ET]

The opening sentence in our last article and webinar was “This INCIID article is about your child’s most important Team member -  You.”

Fertility Research Survey

Research

Fertility research:  Acceptance and mindfulness among couples dealing with infertility.

INFERTILITY AND CHANGE: NEW YEAR’S RESOLUTIONS REVISITED

Departure of Ulysses

Are you recognizing the need to make some changes in the process of adapting to the unwanted reality of the fertility challenge?  And are you sick of all of the articles which predict failure to maintain your promise to yourself? 

An Open Year-End Letter 2015

Down Syndrome girl holding the arms of her parents
Infant twins
infant twins

Tuesday, December 29, 2015

Special Education Advocacy for 2016: The Most Important Team Member

Down Syndrome girl holding the arms of her parents
Photo of Ruby the hounddog
paw prints

Down Syndrome girl holding the arms of her parents[Register for the 2016 Jan. 13 Webinar here.]

This INCIID article is about your child’s most important Team member:  You.

THE PAIN OF THE "PARENTING HOLIDAYS" FOR THE PRE-PARENT by Helen Adrienne, LCSW, BCD

Reproduction is germane to being alive, human or otherwise. It sometimes seems that you are surrounded by babies: birds, bees, dogs, sloths, and more galling than anything, your friends or neighbors who aren't sure that they want a baby but find themselves pregnant by accident. That is, everyone and everything reproduces but you. Helen Adrienne gives insight into the emotional plight for those affected by infertility.

Join us December 16th at 7:30 for a Webinar: Coping with the Holidays with Helen Adrienne

Welcome to INCIID

Happy Birthday INCIID Cake
T-Shirt-I have friends on the INCIID
Miracle and Memories Pin

 Please consider a tax deductible gift to INCIID so we can continue providing services like the IVF Scholarships. Donate today! 
Miracle and Memories PinWe also have Miracles and Memories Pins available with your tax deductible donation. More information here

HAPPY 2016  INCIID celebrates over 21 years in Cyber Space. With your help INCIID will continue to provide a pathway to parenting and support for the family building community it founded two decades ago. INCIID looks forward to new endeavors in 2016. 

Please LIKE US on FACEBOOK and Join a FACEBOOK Group: IVF Scholarship, General Infertility Information, or The INCIID Soapbox (and Current Events Discussions). We also added Adoption Discussions, Parenting After Infertility and Special Education Advocacy

 

Some Easy Ways You can HELP INCIID.

Take a UNselfie and upload it to Twitter - Tell us how much you care about the work we do.

Sign up for Amazon Smile and a percentage of your purchases will be donated to INCIID.
Request INCIID as your cause under  Good Search and Good Shop and a percentage of your purchase will go to INCIID. When you use Good Search with INCIID as your cause - a small donation is made for each search.

Please visit the Memorial Gardens . Donate in the name of a loved one.   Add a memorial to a loved one, a baby or loss of any kind including a failed adoption, loss of fertility or whoever you maywant to remember on this Giving Tuesday or throughout the holidays.

The InterNational Council on Infertility Information Dissemination, Inc (INCIID---pronounced "inside") is a nonprofit organization helping patients explore their family-building options. INCIID is very thankful for its partnership with EMD Serono. Through generous donations of services INCIID is able to provide the “From INCIID the Heart” IVF Scholarship Program for those with medical infertility, financial need and no insurance that covers the cost of IVF. With INCIID you are never alone. Experts answer your question on our Forums New! We have made it easier to find national providers of family building option services and products!

Recorded Webinar: Take a look at the presentation of the implantation process and how patient embryos are analyzed, you will want to watch the webinar. It was FANTASTIC in explaining all the cutting edge science - what works and what doesn't work. Be an informed patient!
Mark will be back sometime this fall to discuss the details of egg freezing.

CHECK THE INCIID CALENDAR for webinars, chats and other events.
 

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